On Fearing the End

My mother tearfully told my sister she knows she is dying and she feels that it’s too soon and she doesn’t want to leave us.

I agree, it is too soon. But unless someone comes up with a miracle cure for dementia with Lewey Bodies, it is what it is.

I feel as though she is being given a powerful lesson on the gift of life. It is not to be wasted. I can only feel extreme sorrow for her situation.

As I read the Qu’ran this year as part of my annual reading challenge; I’ve come to understand that this is as prescribed for her. It states that we will all come to know the hour of our death when it is time. And God will reveal our destiny based on our deeds.

I’m eager to give her some comfort in knowing that her destiny lies ahead after her death and all of this suffering, the blindness, her hallucinations, her inability to find balance while mobile, her loss of memory are part of this journey and will be nothing but a relief when the end arrives.

Logically, it is something on which to look forward. Shedding this suffering for peace. Joining those who’ve departed before her.

Personally, I’m now looking forward to being able to shed my attachment to this material existence just after reading what I have so far from this book which offers so much comfort and something more concrete than the holy texts before it.

The problem I have is that now that she’s in a nursing home I cannot find the pocket of time to convey what I feel might bring her comfort and hope. Being so far away makes it difficult because when I can call, no one picks up or she is asleep.

So I’ve chosen to send flowers with messages of comfort every month with the hope that these messages will be read to her and bring her some peace.

I wish that someone could visit with here in a therapeutic capacity to help her process her feelings. Ease her fears and help her cope. I trusted that my sister would arrange for that level of care but she also is in need of assistance to process what is happening and cope with the stresses of this situation.

I pray that my sister finds the strength to ask for help instead of believing she must go at this alone.

Losing Track of Your Whys

In my years on this big blue marble, I have found it most difficult to be a comfort to those grieving a tremendous loss.

I’ve experienced great sadness over the loss of dear friends, family members and I’ve been witness to those experiencing losses far greater than I can fathom.

In high school, a classmate was killed by a drunk driver and I couldn’t wrap my head around it. So I said what most say in their deepest sadness– “I’m sorry for your loss.”

It seemed a thin sentiment, because at the time, I couldn’t sense how profoundly losing someone you love can leave a chasm of emptiness and suffocating pain. And that grief would be ever present.

As the years went on and I journeyed through life, I had my share of grief personally. But before that, I experienced the helplessness of watching a friend process the loss of a beloved parent.

Nothing prepares a friend to be a support for that. Your heart breaks for them as they go through the five stages. It’s a dangerous time for some because they can lose their why.

No, that last statement wasn’t a word choice mistake. I really did mean why and not way. Although losing your why leads to losing your way in life.

You see, our why is our inner sense of purpose. What is our reason for being here? How is it we are here in this path we walk? That’s actually an opening to a song by the Moody Blues. (ref.: A Question of Balance) Though I digress… just check it out sometime. It’s a beautifully thoughtful song.

Sometimes the upending loss can make one question: “What’s the point of even being here? Why go on?”

They can begin a path of self destruction to deaden their pain or support their reasoning when they reach that depth of grief.

As a friend to someone who reaches that point, you can be their support best through carefully listening as they process this pain and help them find their path back towards their purpose by patiently employing a gentle Socratic method of questioning to lead them back to their whys.

Everyone has whys. They push them aside or forget about them in the noise that is the grief and sadness.

I learned most about this from the writings of Viktor Frankl– a holocaust survivor who was intent on studying those who survived the concentration camps and how they carried on. His findings further developed approaches to helping people contemplating suicide find their inner purpose. (ref.: Man’s Search For Meaning)

I can tell you I lost my whys a couple of times throughout my life. On 9/11 for example, I sat there for hours at my desk realizing nothing mattered. You were my why in that moment.

Later, I lost my whys when I realized I was grieving over love lost and paralyzed with fear after the heart attack and turned to self medication in the form of alcohol and danced ever so close to succumbing to the disease. You saw that and it really took a lot to bring me back. But I had to find my whys again. It was a little harder because you were older and my reasoning was stronger that you’re best off without me.

Through counseling and will, I was able to ask myself the questions to get me back to a personal sense of purpose.

Questions which really helped me comfort and guide when I was needed:

  • Who is left behind who still needs your care and love?
  • What impacts have you had on others so far?
  • What have you wanted to do that you haven’t already?
  • What do you think the person you’ve lost would advise you to do in this moment?
  • If it was reversed and they were here and you weren’t how would you hope that they cope?
  • What brings you happiness, joy and/or peace?
  • What are the ways to bring meaning of the lost one’s impact on you in your daily life?

Notice that none of these are yes/no sorts of questions. Always keep them open and encourage the sorting out of their feelings and thoughts.

Most importantly, be there for them and assure them of your love and support through it all.

Hard to Fight But Scared To Give Up

I have shitty veins. They break, I bruise and most times, it’s nothing. Occasionally it is something.

Something that should have killed me.

Those times I was in the hospital and stents were placed.

Recently, I’ve become more exhausted than usual and moderate to light activity causes chest, and limb pain. Sometimes a headache or neck pain.

The two smallest toes on my left foot are mostly numb. It’s a weird feeling.

I believe I may have Peripheral Artery Disease in addition to the Coronary Artery Disease tiara I wear currently.

I brought it on myself. I don’t exercise regularly, if at all. I have a sedentary job. I have a horrible past of eating like crap and weight has always been a problem for me. Smoking too.

I can talk the big talk by saying that no matter what, I won’t fight another episode; but, frankly speaking, I’m sad and afraid to allow my life to end. This is painful.

Yet the current state of my life, with the stressors of my job and family…I kinda do want a clean out.

I know! I just got done watching “It’s a Wonderful Life” for the second time this season and I cried as always knowing that life is a gift not to be thrown away.

It’s a pity I did whatever the hell I wanted while young with no second thought to the damage I was doing down the road.

I’ve read the articles on reversing heart disease and I do eat a mostly vegetarian diet. My daily fats don’t include butter (unless it’s nut butter) and I eat high fiber foods for breakfast and lunch and add it to our dinner with lean meats or a vegetarian option.

And yet here I am. My left leg numb and stinging after light activity, eating nitroglycerin like tic tacs.

I keep thinking if this is an aneurism or dissection or claudification, I just want to be home to die. I don’t want it to happen while driving or in a stinky hospital or god forbid — in the bathroom stall at work!

I’m finding it harder and harder to go to work in this kind of pain. I’m actually finding it very hard to justify working until I can either recover or just spend my days where I want to be. Home.

I’m also afraid to sleep while in this pain. What happens if I don’t wake?

The control freak in me worries about what mess I may be leaving you and your father to clean up. The paperwork, outstanding bills and accounts to close down. It’s all just a hairy pain in the ass.

I never wanted you to deal with my passing. That’s why I paid for my funeral in advance. That’s why there’s a book that has instructions for after I go. I just don’t have all the rest of the shit in it. Like accounts and passwords. Contacts.

I really must do that for you. I promise if I’m given tomorrow I will get that done.

And if I stroke out (and it’s not deadly) but leaves me where ultimately I am in a vegetative state, do not waste the money keeping me alive. Let me go.

Our healthcare system will ruin you and your father financially if you try to keep me going.

I hope that the afterlife is true and even reincarnation is possible. If I had that assurance I might not be so scared to let go. But this is where I am.

Stuck.

Heartsick.

Sad.

Tired.

Jealous of those who have shittier habits and will outlive me.

A teensy bit angry at myself for wasting the time I had.

Just know that I bragged that my veins were mostly Twinkie frosting when I was your age. How ironic it was for me to hear you brag that yours were filled with cheese this weekend at your grandpa’s house?

I’m here to warn you that even if you don’t smoke and you do stay active, your dietary choices will lead you right down the red carpet I genetically rolled out toward artery disease.

Please do the research now and make the necessary lifestyle choices that reverse the damage you’re doing and you outlive your mother.

To Meh, or Not to Meh?

That is the question.

Lately,  I am finding it difficult to see the good in humanity. At a time when the most good should be happening; I am witness to mass shootings, general apathy toward those in great need of compassion and empathy.

I read an article about a teacher who posted why she is quitting her profession, whereby the most selfless giving is necessary because it was too much for her to bear.

She complained of the lack of respect the kids she taught had for the resources in the classroom, which she often supplied out of her own personal budget. How the kids had little to no regard for their own progress and were failing her class and she would let them because she did all she could to allow them to succeed with the exception of ultimately doing the work for them. And now she will have to face irate parents when she does fail them to answer for why they are failing. She has declared she is done caring. She was lauded for this post and it was shared virally until she deleted it. However, it became an article on the internet with screenshots and responses.

I wanted to share that with you, because what challenged her will challenge you as well. I held back as I didn’t want to dissuade your path if you truly feel you can contribute and you have a passion to serve in this way.

It scares the holy beejeebers out of me that you will be taking on a position where some whack-a-doo with a semi-automatic rifle could end your life and/or the lives of those under your supervision. I worry that some out of control child could assault you in the classroom.

But I know you are my son and you have a natural leadership style which will help you greatly in this career.  However where you excel here I see where you may end up in her position of rant and leave before you begin because of apathy and lack of compassion towards others.

You see, when I lament over the lack of interest in family, your friends’ milestones, your disinterest in sentimental things; it is because these too, are key elements to what makes a teacher strong in their field. Genuine caring, humanity.

I don’t quite know where I went astray in instilling this sense because I exposed you to a life of service, moral teachings, and leading by example. Yet I know I am not alone.

The governor of Texas also notes that what is systemically wrong in society is a lack of humanity. The lack of caring for one another and generally, respecting life. He labelled it hypocrisy. I cannot completely disagree with his points.  We do not want people to be violent yet we are encouraging it in television, film, games, books, music.

He speaks of a desensitization of our society as a result of the bombardment of these things. But I think there’s more to it than just a lack of respect.

I was watching a scene from a television show (I know), where one character is teaching another to drive and the student driver is very concerned about everything and everyone around them. The instructor says “You cannot worry about them, all you can do is worry about yourself.”

This is what is wrong too with society.  Encouraging self centeredness.

There is a scene from “A Charlie Brown Christmas” where Sally Brown, Charlies’s sister asks Charlie to write a letter to Santa; and as she becomes more selfish and adds that all she wants is 10’s and 20’s, Charlie gasps over the extreme commercialism with, “Even my baby sister!” She defends herself by quietly stating “All I want is what I have coming to me. All I want is my fair share.”

Schulz identified the spiral toward where we are today with his social commentary on this self centered mentality and yet it went over most peoples’ heads.

No one is owed anything. Education, great grades, goods, pay, jobs, etc. All require hard work and all require a sense of humanity, a sensitivity toward others.

We need empathy, compassion and community. This is what makes our society and this is what needs to be encouraged. In books, film. television, music, games…

I do know you are thoughtful and proactive, and I simply hope it remains strong and grows further as you grow older.

Logical Science Reasoning: Sex Ed – Masters Level

Reference article in order to digest my message

You probably didn’t click the prerequisite link to read the article, but I will summarize this before the lesson begins.

A Mormon blogger serially tweets a scientific truth that men are 100 percent responsible for all unwanted pregnancies.

Ooh…I bet you took a defensive stance on that sentence, didn’t you?

If you click the link and read each tweet listed in the article you will see that she addressed each and every rapid fire retort that’s swirling in your brain in defense of your responsibility as a man with sexual ability.

Seriously, click it and read it.

I can wait.

Not only is it a grand lesson in biology in a developmental sense but also speaks to the very hypocrisy I’ve spoken to you in the past about expectations on women.

Ok so I bet you skimmed it and closed your mind with the reasoning “She’s a man hater on the attack.”

No, grasshopper, her points are distinct and clearly accurate to the function and capability of your body over and above a woman’s body.

Remember when I told you my friend and I dominated the sex trivia game and kept the high score rating for as long as we were in college? I’m here to say this mother of six nearly perfectly correct.

One more time, read the article point by point and find the two bits she omitted.

Did you find them?

Nah, probably not, my sweet little headstrong Harry.

She failed to mention two ways in which the steps a woman takes can fail in preventing an unwanted pregnancy.

  1. Antibiotics are Birth control pills’ kryptonite. It’s like taking nothing at all. Bam! She’s got a baby on board
  2. Getting her tubes tied won’t necessarily prevent your Olympic swimmers from getting to the golden egg. That’s why I have my cousins David and Sarah.

So where is my lesson in this? When you become sexually active and you will eventually; you must take great care in how you proceed with your partner knowing that one slip-up on your part means fatherhood.

Ask yourself this question: “If we do this deed and she becomes pregnant is she someone I can invest a good portion of my life supporting her financially and emotionally while raising a child together lovingly for the next 18 years? Am I willing to put my needs, goals and life plans on the back burner for that length of time just so I can experience approximately 5 seconds of toe curling, mind blowing, nearly fainting dead away ecstasy?”

Weigh it carefully. What sacrifices would you have to make as a father to raise that child?

If your not willing to commit to your partner like that; then masturbate, use all the forms of contraception at once, (triple bag it if necessary) or abstain until you want that family.

Do not ever expect that your partner is solely responsible for the contraception.

Although vasectomy is an option, like tying tubes, it can fail as well.

And finally, condoms do in fact expire which could make them more prone to break while in activity.

Wisdom from Edgar Allen Poe

The longer I live, the bleaker the future looks to me in terms of the quality of life.

I cavalierly stated a few decades ago, that the older we get the less we will be able to trust all the services we take for granted.

  • Mass transit
  • Healthcare
  • Food quality
  • Water quality

Over those years, this prediction became a horrible reality and then some.

We cannot trust our banking systems now, or the stock market. There are no real consumer protections like there were in the 60s and 70s. Keep track of packaging of groceries; the packaging is smaller but the prices remain the same or rise. That used to be a heinous fraud and consumer protections were in place to prevent it from happening.

Other production protection measures were in place to track the quality of items produced before they went to market rather than after the fact. Recalls were less likely in my youth than that of today.

Now, you also have to worry about what information is shared with you, whether it is a video or news item and who is the source of that information, has that information been doctored in any way to sway your point of view.

The quote above was written in 1850 in a work of fiction called The System of Dr. Tarr and Prof. Fether but is a fair warning for today’s false or misleading information engine.  Just the other day, I watched the journalist Anderson Cooper respond to an allegation that he falsified reporting on the last hurricane which hit the U.S. in the Carolinas.  It was footage of him standing in deep water while his cameraman filmed a few feet away in less than 2 ft of water. This picture went viral on various platforms where he was vilified for making much ado about nothing.

His response was adept in debunking the mislead allegations as to the source (a flood in Texas, several years prior to the current event), the science behind floods and the fact that the cameraman shown in the photo had died just a week or so prior.  He should not have had to do this, but there are people out there who feel the need to cause a rise in the masses for no other reason than to enjoy the show. People who like to watch the world burn.

Inciters so to speak.

I want to remind you that all people are lazy about fact checking what is fed to them on a day to day basis. I have fallen prey to the misinformation on occasion and felt the need to remind you to be vigilant that most of what you hear or see could very well be false and you are behooved to prove it before making any snap judgement. If you choose to be lazy then you become part of the masses (the herd of sheeple who follow the loudest noises) easily manipulated to respond in the manner that the informant wishes.

Check a variety of sources, check the backgrounds of the sources of the information to see what their true motivation is before assuming truth.

And even if you verify all the information is close to true; but the data has to do with a science of any sort, know that science is an every evolving discipline. What may be proven now could be disproved in a matter of months, years or decades.

The longer I live on this earth, the more I know that I do not know much. I am constantly searching for truth. So should you.

Listen carefully to what is said. Read everything with extreme scrutiny. Look for the faulty logic, the contradictions, and the outright lies hidden in the truth.  Know that a well crafted lie is woven within a series of truthful statements.

Only The Lonely

I said that I had more to write about those three weeks with my mom and I deliver.

It was a trip that was overwhelming with all the things to process. The actual things, the emotional things, the outrageous things, me wrestling with my conflicting things, and then the biggest thing.

The loneliness thing.

My mother had her mother for several years as her bickering buddy, her television watching companion, her people-judging partner, her fellow gossip gal, and dining companion.

They laughed, they bitched, they screamed at each other; but through it all, they weren’t alone.

Until Mimi died.

The one thing in which I differ greatly from my mother is that I am most content to be alone. I believe she has always been a social creature but too afraid to put herself out there. Mimi carried her socially. Was it social anxiety?

Maybe.

Mom had few friends of her own. She liked groups in her youth. A gang of friends with whom to spend time. She had a couple close friends in Germany but after moving to the States they held a fairly infrequent correspondence until that eventually faded away.

In the end, she had her mother, Mimi. They were friends in a loving, and yet, volatile way. Like a Debbie Reynolds-Carrie Fisher way, I suppose. Or maybe mix between a Joan and Christina Crawford way.

Their downs were dramatic for certain.

After Mimi was laid to rest, one would think that mom would have had an Earnshaw epiphany and realized now she had the freedom to really live.

I think she had some of it, but it was my sister who now carried her. Mom was not ever going to be brave enough to independently seek happiness for herself, make new friends, or build a career.

I think after the disease took hold and really presented itself, my sister could no longer carry her socially and the role of patient to caregiver began.

This meant hiring in care workers while my sister worked and it meant hours Mom went without human interaction. She could not drive anymore due to macular degeneration stealing her vision and the LBD made it risky for her to venture out to visit with nearby neighbors. (Although, most nearby she had some bone to pick with at some point.)

You and I both know we can go hours on end without any interaction except for television, books, music or the internet and relish in it.

However, imagine yourself blind and all that self entertainment is dependent upon your sight. Operating remote controls, not knowing what’s going on in a program (if you do manage to fumble your way to a show to watch) due to simply music and no dialogue. Much is lost.

Inevitably, loneliness sets in.

And boredom.

This is now an Eleanor Rigby stanza.

While I was there she had the 7/24 company she hadn’t had in years. We talked and watched shows, listened to audio books and dined together. The one thing I wished we could have done was taken walks together. She simply wasn’t steady enough on her feet to do that, however.

Having to return was the single most conflicting action of my life. I’m needed in my own family but I was beneficial there too. Every time I took a trip to the store I saw opportunities to just uproot and stay there. But it would mean starting over. There are no real job prospects in that area and it would mean forcing the whole family to forsake their paths for my sense of responsibility.

There seemed to be no right answer on this. Deep down, I believe I should have stayed longer. Everything inside me screamed I was failing her, I was failing my sister and I was failing my sense of responsibility toward family.

But I have an immediate family too–you and your father.

I knew when I returned, I wasn’t totally myself because I focused on her loneliness. Leaving her back to the hours on end without interacting with others. She spent some time in a nursing home facility after I left, so she had more contact with others but she fell while there a few times.  The trade off did not seem to balance in my opinion.

I made it a point to call her after I got back and it was a hit or miss when she would answer the phone. When she did, it was clear that our conversations would be superficial and tiring for her as she struggled to complete thoughts. I don’t want to frustrate her at all. So making the calls seems to be reopening a wound over and over for her.

This disease is complicated and difficult to know exactly how to help from this distance to combat the loneliness. I want help but I want her to rest as well.

My advice to you is to treat those who may be suffering from loneliness the way you would wish to be treated if you felt alone. Just be sure that in your efforts you are doing good in the process and not creating more pain. Take care with your intentions and act accordingly.