Just in case what is stealing the years from me is in fact the LBD and I inherited this, I will describe my symptoms.
At age 32 I had issues with the twitching uncontrollable digits (toes) and eyelid. Passed it off as a deficiency due to pregnancy. Had heart issue but had no idea it was a heart issue.
Around my 40s I developed a problem with not being able to turn my head from side to side very fast without getting quite disoriented and dizzy with nausea. Late into the 40s I dropped weight for no reason at all and the lightheadedness began. Also strange rushes of adrenaline like being on a roller coaster and feeling that strange rush just as you are heading down really fast on the incline.
My mid 40s was a sense of feeling like I hadn’t much time left and the desire to get real living in before it was through motivated me to take trips I hadn’t, speak out more and pursue relationships I hadn’t ever considered. For fear that time was not on my side. This was also the time when my libido went haywire.
If I peered through window mini blinds my neck would shake like I had Parkinson’s. Still cannot peer without that shake (holding my head at a certain angle that is)
Somewhere in my late 40s, I began to have trouble with my ability to concentrate on tasks and remember things which are recent. I began to write notes to myself and set reminders.
The numbness of my left leg was a problem in the first part of age 51. The swelling of that same leg and the sensation of feeling like the floor was moving beneath me giving me a wholly unsteady feeling. I really thought I was going to die. I did my best to walk to try to get circulation going. I somehow recovered a bit.
End of age 51 I had burning mouth syndrome. Still off and on with the inability to stay hydrated. Worst in the middle of the night waking me with extreme thirst. This is when the inability to sleep through the night began.
Last summer that swelling in my leg returned as well as a pain in my lower abdomen which mimicked the feeling of urgency to defecate/urinate. Loss of continence off and on and when the pain got so bad it was a struggle to empty my bladder. I started also to have angina like pain and all out gastro intestinal distress. Like my body was forgetting how to autonomically function. I had brain fog most days probably due to lack of sleep as I was up most nights with pain, urgency and the inability to relax.
My ability to type well without typos started and my handwriting has been iffy – like I form letters but the pen is not going where I want – so signing my name is a gamble. Some days are better than others. I cannot rely on learning new things as nothing is sticking. I have to write handy guides as I am shown things because I cannot pull it up in short term.
Reading stories are difficult now. I used to be able to read and concentrate on my reading but now I cannot maintain concentration on the act of reading for very long. I can only read a page or two at a time. And it is hard to retain the things I have read. Do not ask me about films or movies either. I can watch a season of a show and then in a month, if you ask me about the details of it, I will not recall a thing.
What I am noticing now with the extreme dives into dehydration is the drying of my eyes! Like they are covered in sand. I purposely try to see something to make me cry when it is at it’s worst. I do not think I have chronic dry eyes but I think it is related to the dehydration. Also the bags under my eyes are really pronounced now. Before it was a coming and going thing. Now it seems it is permanent.
The amount of water I drink in a day is more than the average person. And if I don’t? Debilitating headaches, angina and lightheadedness.
Are these all early signs of LBD? I do not know. I just know Mom was restless at night, had the same abdominal pain, Are any of these other things related? Mom had issues with constipation and if I do not maintain a high fiber diet I do too. It is my worst fear that I have the same and I passed it onto you.